Monday, December 13, 2010


We had our first appointment this morning, and it went pretty well. Brady played nicely while we talked about some of the things we're concerned about. We all knew he was listening even though he acted like he wasn't, so she pulled him into the conversation every so often to ask him what he thought about what we were talking about and to get confirmation that he had a hard time with those things. Then, Brady and Daddy went out into the hall while the doctor and I talked privately and I could go into more detail with examples of his behavior, and explaining what type of reward systems we've used, etc. We left with lots of questionnaires to fill out, and a couple sheets for his teacher to fill out. After we get all those back to her, we'll set up another appointment for her to play with Brady. Brady said he liked her and seemed okay with the idea of meeting with her more. I'm really hoping all of this is worth it in the end and we'll figure out how to help him. Never thought we'd have to go to a professional to get help with parenting our kid. Sometimes I wonder if we're overreacting or trying to find something to blame our kid's behavior on. Or, that he's a normal little boy and we just can't handle it. I'm sure plenty of people that know us and him probably think that's what it is b/c he can usually hold it together so well outside of the home. But, then he'll have an "episode" where we're all left exhausted, scared, and overwhelmed (Brady included) and I remember why we started down this path to begin with. We shouldn't have to live like this, always waiting for an explosion and walking on eggshells trying to keep another explosion from happening. He's such a loving, sweet kid and I hope we can take care of all this other stuff so that he can have a happier, less stressful childhood.

Wednesday, December 8, 2010

Homemade crash pad

I'm so excited! I finally got around to making a crash pad for Brady. Hoping to get the rings and rope ladder from Ikea at some point, and we can have a little therapy area. Plus, we're getting tired of the boys always pulling the couch apart just to jump on the cushions! I found a twin duvet cover at Bed, Bath & Beyond for $15, and as an added bonus, it's a super soft plush fabric. Last one left, like it was just waiting for me. I also found a company near me that basically does custom foam cutting for other companies. They let me use a bunch of foam from their scrap pile, and even cut it up into pieces for me. So excited! They'll be getting it for Christmas, and I'm sure it'll be a hit. It's now hiding in our unfinished basement, and I honestly don't know where it's going to live once it has to come upstairs as it's pretty big.

Sunday, December 5, 2010

More on the bus, and maybe some hope for help?

In my last post, I was talking about Brady's bus behavior and how he was going to start sitting by himself.

Well, that didn't exactly help things. I thought he was doing ok, but then the driver called me up one day to tell me that she'd have to write him up b/c another parent had called to complain about his behavior. The next day, I got a call from the Asst. Principal telling me that Brady had scratched another kid while walking from the bus to the school. On the face, from right by his eye down his cheek, drawing blood, for no apparent reason. I happened to be having lunch with him that day, so I stopped by her office afterwards. She had talked to his teacher about his sensory issues, and she was actually pretty familiar with the disorder and things that can help! I was very encouraged. She had already talked to the school's OT about some ideas to help him on the bus and during school. She has an older student with the same problem who she pulls out of class to do "chores" for her while wearing a heavy backpack, and PE teacher will let kids come to the gym for sensory breaks . The Asst. Principal is going to work with the OT to get a game plan in place to help Brady get some breaks during the day. It feels great to have someone willing to help us even though he doesn't qualify for an IEP. We got a release form for our OT to talk to the school's OT. And, as an added bonus, we actually know the school's OT. She's a friend of a friend and we have been to many parties together. I feel like we are actually on the road to getting Brady what he needs. Too bad it took him drawing blood from another kid's face to do it.

So, back to the bus.  Apparently, he's been sliding under his seat to get to the kids behind him and bother them. And he's been grabbing and messing up artwork, even threw one out the window. Sounds like he has been seriously out of control. I truly think it's the noise on the bus that is hyping him up. He used to avoid loud settings like that, but he can now "cope" with it. Problem is, it usually causes him to lose control of his body.

He was off the bus for the last half of last week. Hard for us b/c I have to wake little brother up from his nap to get to school in time in the afternoon. And Brady was seriously averse to the drop off line in the morning. Lots of drama after waiting in the line, pulling up to the curb, and then having to go park in a faraway place and walk him in with Henry in tow.  We're planning on him riding the bus again tomorrow, and I'm nervous. Here's our plan -
1 - He'll have headphones playing classical music and our old iPhone to play games. Hoping the music will drown out the bus noise, and the games will help him keep his hands to himself.
2 - A fourth grader (friend from across the street) will sit with him to help if he needs reminding about turning on his music and playing his games and staying in his seat.
3 - I've been reminding him that having his bottom touching the seat is the only way to be safe on the bus. If the bus is moving, then his bottom needs to be on the seat. Just like when the car is moving, his buckles have to be buckled.
4 - The Asst. Principal is going to try to get a weighted lap pad for him to keep on the bus. He has one in the car, and he is much calmer when he has it on.

I'm scared, but we'll give it a week and see how it goes. I have a feeling I'll most likely be driving him after the winter break b/c it always seems like my best laid plans don't work with him. But, we'll see...