I haven't given an update on where we are with Brady lately, so here it is.
A couple months ago, in the midst of our very difficult summer, I had made an appointment to have Brady re-evaluated for OT b/c I felt like he was back sliding quickly after 8 months without OT. Last week was the earliest they could see us. At this point, I keep feeling like he's doing better, but I think it's more that he's now in full day school and I'm not dealing with his antics all day long. On the weekends, Daddy's around most of the time, taking a lot of the burden off of me. And, we've all gotten better at recognizing when he needs to bump and crash and climb and kick and we (Brady included) now know of ways to get it appropriately. Still, he's been having a lot of behavior problems that could or could not be SPD-related. So, off to the evaluation we go. She does the normal fine-motor testing, everything's caught up there (good, but means insurance won't cover any OT now). Then she does some muscle and reflex testing. Found out something new there - he was asymmetrical tonic neck reflex, something that is supposed to go away by 6 months of age and that is now hindering his ability to hold his pencil correctly. He grips it kind of weirdly and too tight in order to fight the reflex that shouldn't be there. It was a simple test to find this out, but no one had done it before. And I did it to my husband. Guess what? He has it too!
By the end of the session, Brady was getting bored and jumping on the padded bed in the testing room, so the evaluator got to see that side of him. She gave him a sensory toy to play with, too. Then, she got to see a little bit of the behavior problems that we've been dealing with. He refused to give up the toy. He screamed that he wanted to be alone as he tried to hide from us. In my mind, I know that's what he does when he starts feeling threatened and is scared he'll start hitting and kicking. Too bad this wasn't the time or place to run off and hide. We got him out towards the waiting room and he did finally give up the toy - by throwing it at the OT. Then, we took the next ten minutes trying to get him to pick it up and hand it to her. He is just so darn defiant!! That's when she emphatically re-answered an earlier question I had asked - "Yes, I think it would be a very good idea to talk to the psychologist". I've had this nagging feeling that there's more to Brady's problems than just the SPD. I feel like we've got a decent handle on it, but he's still acting out. So, we've filled out the paperwork and are waiting on a call to set up an appointment with her. And, in the meantime, we're going to do some more OT, once a week, to make sure his system is organized before we start anything else.
In other news, we met with his teacher later in the week and she thinks he's doing fine. Not any worse than some of the other boys. Just a bit fidgety mostly, started doing cartwheels one day, hitting someone the next but overall not a disruption to the classroom. He's having a little trouble getting some of his work done, but it's getting better. We told her some things she can do to help him, and we just hope she'll do them and he'll be able to progress well in school.
Don't Give Up
5 years ago